Money raised is used to support our mission, which is threefold:
- We improve care and support for people with MND, their carer’s and families.
• We fund and promote research that leads to new understanding and treatments and brings us closer to a cure for MND.
• We campaign and raise awareness so the needs of people with MND and everyone who cares for them are recognised and addressed by wider society.
We have established a world-class reputation with healthcare professionals, policy-makers researchers, supporters and the people at the very heart of our work – those living with the devastating effects of MND. We are the only national health charity in England, Wales and Northern Ireland focused on MND care, research and campaigning.
Our support activities for people with and affected by MND include:
- A network of multi-disciplinary Care Centres which provides high quality coordinated care from expert professionals in one place.
• A network of regional staff providing front line support to people with MND and education to other care-givers.
• MND Connect – an online and telephone information service and lifeline for those affected by MND.
• Equipment Loans – life-changing medical and communication equipment.
• Association Visitors – a volunteer expert advisor and friend for all those affected by MND.
We are a leader in the funding and promotion of the world’s most ground-breaking and pioneering research into MND. The Association funds biomedical research into the causes of MND, the search for a diagnostic test and a cure, and healthcare research to improve the lives of people living with MND. As of 1st January 2018, our research portfolio consists of 96 grants worth £15.5 million. Last year we awarded 29 new grants, worth £2.7million. We collaborate with research teams all over the world in the battle against MND.
Together with our amazing campaigners we have been able to make a difference to the lives of people with MND, their families and carers. A recent success through our campaigning and lobbying was the publication of a NICE (National Institute for Health Care Excellence) Guideline on MND. The guideline sets out in detail what good care looks like and how it should be delivered by NHS and statutory service. It will shape future care and have a huge influence over the quality of life for people living with MND, their families and carers. This fundamentally echoes what we have been campaigning on for several years. It urges a joined-up approach and where a multi-disciplinary team works together it extends life.
Our work is only made possible thanks to the incredible generosity of our supporters. Donations come from a variety of sources, from regular monthly donations, imaginative corporate support or unusual fundraising challenges. All support reaches people with MND, their families and carers and enables us to invest in MND research.
You can read more about out work and how we make a difference here: